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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Do You Suffer From Arthritis As A Result Of Bleeds? If So, What Treatment(s) Do You Use?

A MyHemophiliaTeam Member asked a question 💭
San Antonio, TX

I have severe arthritis in both of my ankles. I use, Celebrex and an AFO brace.

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A MyHemophiliaTeam Member

I have severe arthritis in my knee because of repeated bleeds and had a could have radioactive synovectomys which have just finished my knee off. On celecoxib, txa and 2000 daily benefix

The Benefits Of Medical Marijuana

A MyHemophiliaTeam Member asked a question 💭
Durham, NC

I've been reading a lot about the benefits of medical marijuana with people with hemophilia. Can anyone give me any insight

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A MyHemophiliaTeam Member

Thanks !!

The Benefits Of Medical Marijuana

A MyHemophiliaTeam Member asked a question 💭
Durham, NC

I've been reading a lot about the benefits of medical marijuana with people with hemophilia. Can anyone give me any insight

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Tips For A Factor IX Who Travels For Work?

A MyHemophiliaTeam Member asked a question 💭
Gulfport, MS

I have factor IX hemophilia. I graduate college on May 12th, 2017 and have a job which will put me on tour with a nationally touring band. What are some tips if you have any that could help? How to get more factor when I'm on the road, contacts I should have, how to get more equipment (needles, syringes, etc) if I need more, etc.
I only take factor on demand, so I don't run out quickly. Don't really see this being an issue, but any information and tips will be helpful.

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A MyHemophiliaTeam Member

I am also Factor IX deficient and do alot of traveling, including work related prior to recently retiring.

I always carried 2 doses with me and kept close contact with my base hemophilia doctor… read more

Health Insurance

A MyHemophiliaTeam Member asked a question 💭
Ann Arbor, MI

I live in Michigan, and we have Childrens Special Health, that covers hospitalizations, factor, and supplies, with no cap.
I'm looking to moving somewhere possibly warmer in the future, and I'm curious about coverage in other states. I'm a very special, and severe case, and want to be sure I'll get the coverage that would keep me healthy.
If you care to share, that would be amazing.

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A MyHemophiliaTeam Member

I don't have hep-c but know of some people that does or did. They now have treatment for it.