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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

How Do You Prep For Physical Activities To Avoid Injuries? 🏃‍♂️⚠️

By A MyHemophiliaTeam Member 2 answers
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I Hope Everyone Has Had A Good Day!

By A MyHemophiliaTeam Member
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Which Hemophilia Symptom Surprised You The Most?

By A MyHemophiliaTeam Member 2 answers
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What’s Your Go-to Routine For Joint Health? 🦵🧘‍♂️

By A MyHemophiliaTeam Member 1 answer
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207 questions

I Just Asked

A MyHemophiliaTeam Member asked a question 💭
Londonderry, VT
A MyHemophiliaTeam Member

Your most recent question was: "I Am So Worried About My Son He Has Mild/moderate HP Now Diagnosed With VWD If He Has An Internal Bleed How Will I Know?" Let me know if you need further clarification… read more

January 4

I Am So Worried About My Son He Has Mild/moderate HP Now Diagnosed With VWD If He Has An Internal Bleed How Will I Know?

A MyHemophiliaTeam Member asked a question 💭
Londonderry, VT
A MyHemophiliaTeam Member

Internal bleeding in children with hemophilia or von Willebrand disease (VWD) can show signs like joint swelling, pain, or tightness, especially in the shoulders, hips, ankles, or knees. Watch for… read more

January 4

What Advice Are You Grateful To Share With Others About Hemophilia?

A MyHemophiliaTeam Member asked a question 💭
San Francisco, CA
A MyHemophiliaTeam Member

Let your kids be kids. Let them push their physical limits. Let them learn what their limits are at a young age, when it is safer; than waiting til they are off on their own and may not have the… read more

December 23, 2024

What’s One Thing About Hemophilia That People Rarely Discuss But Should?

A MyHemophiliaTeam Member asked a question 💭
San Francisco, CA
A MyHemophiliaTeam Member

Safety.

December 3, 2024

What Have You Found Helpful In Easing Pain Related To Hemophilia?

A MyHemophiliaTeam Member asked a question 💭
San Francisco, CA
A MyHemophiliaTeam Member

I think the most important thing is to find a treatment plan that gives you ongoing bleed protection to prevent bleeds from adding to already existing pain from damage caused by prior bleeds. There… read more

November 11, 2024

What Tips Do You Have For Staying Active While Dealing With Bleeds?

A MyHemophiliaTeam Member asked a question 💭
San Francisco, CA
A MyHemophiliaTeam Member

I have not done that.

December 3, 2024

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

A MyHemophiliaTeam Member asked a question 💭
San Francisco, CA

Do You Follow A Specific Diet To Help With Hemophilia?

A MyHemophiliaTeam Member asked a question 💭
San Francisco, CA
A MyHemophiliaTeam Member

My family doesn’t follow a diet , but one thing that we do to help boost our hemoglobin and hematicrit from bleeding episodes is to make jello any flavor gelatin. Make as directed but do not… read more

September 23, 2024

Which Hemophilia Symptom Surprised You The Most?

A MyHemophiliaTeam Member asked a question 💭
San Francisco, CA
A MyHemophiliaTeam Member

While most of my bleeds were pretty closely related in regards to the pain level, but the two that surprised me the most were the shoulder and groin bleeds. When I had a shoulder bleed flare up, I… read more

August 19, 2024

Hasanyone Ever Experienced A Surgeon That Has No Concern Regarding Hemophiliac

A MyHemophiliaTeam Member asked a question 💭
Miami, OK
A MyHemophiliaTeam Member

I have not had my hemophilia discounted by most respectable physicians. When having a recent dental procedure, the doctor responded that the hemophilia would not be an issues with a scheduled Root… read more

August 19, 2024
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