I am also Factor IX deficient and do alot of traveling, including work related prior to recently retiring.

I always carried 2 doses with me and kept close contact with my base hemophilia doctor throughout the last 10+ years.

Also on demand, I've had many out of state events. Keep your benefix current (not expired) Noone will administer for you if it's expired and they don't have any in stock. The supplies (needles, Turnicut, etc) will be supplied with your benefix if you let them know.

My base hemophilia team will search out ERs, Hospitals that have benefix on hand and call ahead my arrival.

Just don't get lax on the process as that is when the demand will arise.

Cate

Your supplying specialty pharmacy should have a special representative for hemophilia treatment product. Get in touch with them and develop a relationship with regular check-ins. They should be able to overnight ship anywhere in the country. You can have product and supplies sent to FedEx office locations for you to pick up while you are on the road.

Depending on where you are from makes everything easier. The doctor I go through has an employee whose job is to make sure the patient has the factor they need when they need it. Ask your doctor about it. They should be able to direct you to someone.