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What Tips Do You Have For Staying Active While Dealing With Bleeds?
I have hobbies that start at drawing or using the iPad in bed, depending on bleed location play guitar, if ok to work on computer. I do photography of birds, butterflies and etc… in my backyard. I… read more
What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃
Do You Follow A Specific Diet To Help With Hemophilia?
My family doesn’t follow a diet , but one thing that we do to help boost our hemoglobin and hematicrit from bleeding episodes is to make jello any flavor gelatin. Make as directed but do not… read more
Which Hemophilia Symptom Surprised You The Most?
While most of my bleeds were pretty closely related in regards to the pain level, but the two that surprised me the most were the shoulder and groin bleeds. When I had a shoulder bleed flare up, I… read more
Hasanyone Ever Experienced A Surgeon That Has No Concern Regarding Hemophiliac
I have not had my hemophilia discounted by most respectable physicians. When having a recent dental procedure, the doctor responded that the hemophilia would not be an issues with a scheduled Root… read more
What’s Your Go-to Routine For Joint Health? 🦵🧘♂️
Share your routines for maintaining joint health, such as exercises, stretches, or therapies that have helped you.
Comment below with your joint health routines and let’s keep each other moving! 💬
Read more on the ways to protect your joints with severe Hemophilia: https://www.myhemophiliateam.com/resources/ways...
Walking and bike riding are my main cardio activities. I also do calisthenics such as various types of pushups, as well as using resistance bands to help maintain muscle strength, which in turn helps… read more
What Are Your Top Tips For Dealing With Hemophilia In The Heat?
Any Updates News On Gene Therapy On Hemophilia A ( Factor 8 Deficiency)?
Certainly! Here are some updates on gene therapy for Hemophilia A (factor VIII deficiency) based on the knowledge base:
- Breakthrough Results: A recent gene therapy trial showed promising results… read more
Are You Frustrated With Finding Effective Treatments For Hemophilia?
I understand the question, but what has not been effective?
What's A Common Misconception About Hemophilia?
That only men can have Hemophilia, specifically Hemophilia A. My Mom was NOT a carrier but my Dad had severe Hemophila A. They say I acquired at birth via Lyons Hypothesis. Do you know how many… read more
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