Quick Links
Resources
About MyHemophiliaTeam
Powered By
Do Any Of You With VWD Experience Petechiae And Fatigue?
For the last couple of months, I've experienced periodic extreme fatigue and I get petechiae (small red dotted rash) on my legs and chest. Are these typical symptoms any of you have experienced with your Von Willebrand Disease? What do you do about it?
I am always tired and have petechiae in random places, not to many, they are on my chest and legs. Should I worry?
Are You Jealous Of People Who Can Navigate Stairs Without Using The Handrail Or Are You “NORMAL”? 😝
Navigating life with hemophilia can indeed bring unique challenges, and it's completely normal to feel a range of emotions about it. Finding a "new normal" often involves accepting these challenges… read more
I Live In An Area Of 330,000 People. I Can’t Find A Surgeon To Remove A Cyst. What Do You Recommend?
Hey @A MyHemophiliaTeam Member! Have you found a surgeon yet? Finding a surgeon experienced with hemophilia can indeed be tough. Here are a few suggestions that might help:
- Hemophilia Treatment… read more
Do Any Of You Lovely People Suffer From Fatigue?
Yes, I’m severe fXI and my fatigue is a daily thing but it’s made worse from the cold. Best thing is to take more time for yourself and caffeine aha
Pregnancy With VWD. Has Anyone Had A Problem With Miscarriages.
Has Anyone Encountered A Surgeon Who Is Not Concerned With The Deficiency
Yes, some members on MyHemophiliaTeam have shared experiences where they encountered surgeons who were not adequately concerned with their hemophilia. It is crucial to find a team of doctors who are… read more
Do Any Of You With Vwd Have Extreme Fatigue,joint Pain And Burning?
I can't seem to get enough sleep anymore. Somedays my joints hurt so bad I can hardly move and I am experiencing a terrible burning sensation around different joints when I move them. The most recent one is next to certain areas along my spine. My VWD is mild but this all worries me since it is happening more frequently.
People with von Willebrand disease (VWD) can experience symptoms such as fatigue, joint pain, and burning sensations. Fatigue can be linked to anemia, which is common in bleeding disorders like VWD… read more
The Benefits Of Medical Marijuana
I've been reading a lot about the benefits of medical marijuana with people with hemophilia. Can anyone give me any insight
Thanks !!
Spontaneous Black And Blues
I have what appears to be blood vessels that break spontaneously in my fingers and feet. It burns for a while and then a black and blue mark appears. is this common in people with Von Willobrands Disorder?
Sounds like joint bleeds. I have it in my hands and arms and knees. But that’s exactly what happens, the burning and bruising is common with vwd usually what feels like arthritis pain follows.
The Benefits Of Medical Marijuana
I've been reading a lot about the benefits of medical marijuana with people with hemophilia. Can anyone give me any insight
Your Privacy Choices