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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 7 search results for "Tretten" in Q&A. To see all results and access other features, sign up for free.

Big Bruise To Forehead

A MyHemophiliaTeam Member asked a question 💭
London, UK

Hi, my 3 year old son has moderate hemophilia, level 3.

He had a nasty bruise on his forehead that has swelled up to a golf ball size, and has rebled a little.

Apart from trans acid, is there anything any of you guys have used to stop the bleeding and support recovery?

We are very worried

Thanks so much

David

A MyHemophiliaTeam Member

For a big bruise on the forehead, especially in someone with hemophilia or a bleeding disorder, it's important to take specific steps:

1. Rest: Avoid using the injured area
2. Ice: Apply a cold… read more

Do Any Of You With Vwd Have Extreme Fatigue,joint Pain And Burning?

A MyHemophiliaTeam Member asked a question 💭
Sheboygan, WI

I can't seem to get enough sleep anymore. Somedays my joints hurt so bad I can hardly move and I am experiencing a terrible burning sensation around different joints when I move them. The most recent one is next to certain areas along my spine. My VWD is mild but this all worries me since it is happening more frequently.

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A MyHemophiliaTeam Member

People with von Willebrand disease (VWD) can experience symptoms such as fatigue, joint pain, and burning sensations. Fatigue can be linked to anemia, which is common in bleeding disorders like VWD… read more

In Need Of Oral Surgeon In NYC

A MyHemophiliaTeam Member asked a question 💭

Hello. I’m living in NYC can not find an oral surgeon that will do work on a hemophiliac. Any help please.

A MyHemophiliaTeam Member

I like Dr. Mahjoubi. She did my wisdom teeth op

When Surgery Is Needed , How Do You Get Oncologists/hematologists To Work With Surgeons To Arrange Surgery, Infusions, And Observation?

A MyHemophiliaTeam Member asked a question 💭
Little Elm, TX

I posted an in detail story about what’s happening, but in short. I need multiple surgeries and I am constantly being canceled by the oncologist for numerous reasons (not financial) for some ridiculous reasons such as dates, locations, etc. no referrals or rescheduling, no nothing, just cancels the surgery and surgeons eventually get annoyed and back out leaving me scavenging for other surgeons. Which most once they hear hemophilia refuse to do the surgery because apparently this is a common… read more

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A MyHemophiliaTeam Member

I use to have the same situation. Now I have them contact my hemotologist to set up a treatment plan together. Since I started this method. I haven't been rescheduled, denied, postponed, etc

NOWIQ And Octapharma

A MyHemophiliaTeam Member asked a question 💭
Sumter, SC

got a packet from the non-profit chapter about this company and their product. was just wanting to see the reviews from people that i have connected to or a support group that i am in.

its derived from human based cells, from what i am gathering. just not sure on it as last i remember when they had tried something along that line the AIDS and Hep C outbreak occurred.

A MyHemophiliaTeam Member

All Factor products available in the United States are safe from Hep C and HIV. Nuwiq is manufactured from human cells, but is not from human blood plasma. Even plasma derived factor in US is heat… read more

Joint Bleeds

A MyHemophiliaTeam Member asked a question 💭
Sturgeon Bay, WI

I have von Willebrands disease. I really don’t know much about it. I was told its a relatively minor case but that’sall i know. I don’t know what to expect with this disease and have a lot of body pain and headaches. I’m not sure if any of this is from vwd or if it’smy other conditions.

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A MyHemophiliaTeam Member

I have VWD and have always been told it’s a Factor VIII deficiency.

How Do I Discourage My 17 Yro. Severe Hemo. A Son, Not To Buy A Motorcycle?

A MyHemophiliaTeam Member asked a question 💭
Pinellas Park, FL

.Hi, My 17 yro. Severe A son, is determined to buy a motorcycle. He has written and explained a 3 page report to me and his dad the reasons why he should be allowed to get a motorcycle. To me, this just sounds like the craziest idea in the world.--No exceptions!---A no brainer. But trying to convince my son is a totally different argument
This would not happen right away, but probably within the next 6 to 8 mos
I am searching for help from the "older" more experienced people,-- who may… read more

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A MyHemophiliaTeam Member

I just joined this sight and I saw your post from over 2 years ago. Having had motorcycles since I was 10 made me curious of your outcome. I am Severe A also. Hope all is well. Glenn