Connect with others who understand.

Sign up Log in
Quick Links
Q&A Treatments A-Z Help Center Guidelines Crisis Accessibility
Resources
Emotional Well-Being Hemophilia Information Hemophilia Symptoms and Side Effects Hemophilia Treatments Living With Hemophilia All Resources
About MyHemophiliaTeam
What is This Site Terms of Use Privacy policy
Powered By
See answer

Your Answers: The Worst Hemophilia Advice (Infographic)

Posted on November 13, 2016

We asked and you answered! We posted this question: What bits of "advice" do you wish people would stop telling you? and you took the time to respond.

What did we learn? From the unconcerned ("He will grow out of it") to the plain unhelpful ("Is it contagious?"), advice is hurled at us from friends, family, coworkers, even strangers. While most suggestions are probably well-intentioned, hearing them over and over can make us feel that our condition is minimized and misunderstood.

Some of the most common answers we heard:

  • He will grow out of it
  • Is it contagious?
  • Just be more active
  • It could be worse
  • He's fine though, right?
  • Just don't worry

Everyone's situation is different and not all of these apply to each person. Tell us: What advice about hemophilia do YOU wish people would stop telling you?

RELATED QUESTIONS

  • Is there a cure for hemophilia? See answer
  • What are foods and drinks to avoid with hemophilia? See answer
  • What are the different types of hemophilia and what are the differences? See answer
  • What can be used and taken for hemophilia pain? See answer
Posted on November 13, 2016

A MyHemophiliaTeam Member

I became a college professor. I was open with people about my bleeding disorder and tried to educate them. I also stayed away from my old dangerous sports and power tools that had blades. Biggest… read more

June 24, 2020
All updates must be accompanied by text or a picture.

We'd love to hear from you! Please share your name and email to post and read comments.

You'll also get the latest articles directly to your inbox.

This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service.
Privacy Policy
All updates must be accompanied by text or a picture.

Subscribe now to ask your question, get answers, and stay up to date on the latest articles.

Get updates directly to your inbox.

This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service.
Privacy Policy

Related Articles

GLP-1 Drugs and Hemophilia: Are They Safe To Take?

Living with hemophilia means balancing various aspects of daily health, from managing bleeding ri...

GLP-1 Drugs and Hemophilia: Are They Safe To Take?

Living with hemophilia means balancing various aspects of daily health, from managing bleeding ri...
read article >

Can You Get a Tattoo With Hemophilia?

Considering getting a tattoo when you have hemophilia requires careful decision-making. Whether y...

Can You Get a Tattoo With Hemophilia?

Considering getting a tattoo when you have hemophilia requires careful decision-making. Whether y...
read article >

5 Ways To Reduce the Cost of Hemophilia Treatment

Hemophilia treatment isn’t cheap. Out-of-pocket costs for clotting factor therapies alone can be ...

5 Ways To Reduce the Cost of Hemophilia Treatment

Hemophilia treatment isn’t cheap. Out-of-pocket costs for clotting factor therapies alone can be ...
read article >

Getting Disability Benefits With Hemophilia: Do You Qualify?

Life with hemophilia is different for everyone. Those with milder forms of the blood-clotting dis...

Getting Disability Benefits With Hemophilia: Do You Qualify?

Life with hemophilia is different for everyone. Those with milder forms of the blood-clotting dis...
read article >

9 Tips for Living Well With Hemophilia

Living with hemophilia, or caring for a child with the condition, can be challenging, even with t...

9 Tips for Living Well With Hemophilia

Living with hemophilia, or caring for a child with the condition, can be challenging, even with t...
read article >

9 Medications To Avoid With von Willebrand Disease

Living with von Willebrand disease (VWD) presents unique challenges, especially when it comes to ...

9 Medications To Avoid With von Willebrand Disease

Living with von Willebrand disease (VWD) presents unique challenges, especially when it comes to ...
read article >

Recent Articles

What Is Hemophilia? An Overview

Hemophilia is a rare bleeding disorder usually caused by certain genes. Most often, hemophilia ge...

What Is Hemophilia? An Overview

Hemophilia is a rare bleeding disorder usually caused by certain genes. Most often, hemophilia ge...
read article >

Hemophilia Types: Von Willebrand Disease, Hemophilia A and B, and More

Hemophilia and other bleeding disorders are often caused by problems with clotting factors — spec...

Hemophilia Types: Von Willebrand Disease, Hemophilia A and B, and More

Hemophilia and other bleeding disorders are often caused by problems with clotting factors — spec...
read article >

3 Layers of COVID-19 Protection: New Vaccines, Prevention Drug, and Tests

This fall and winter, the Centers for Disease Control and Prevention (CDC) expects the number of ...

3 Layers of COVID-19 Protection: New Vaccines, Prevention Drug, and Tests

This fall and winter, the Centers for Disease Control and Prevention (CDC) expects the number of ...
read article >

4 Ways To Reduce the Cost of Medication (VIDEO)

Here are four ways to save money on medications...

4 Ways To Reduce the Cost of Medication (VIDEO)

Here are four ways to save money on medications...
read article >

Is von Willebrand Disease Inherited? How Genetic Patterns Work

Being diagnosed with von Willebrand disease (VWD) may lead you to wonder whether you inherited it...

Is von Willebrand Disease Inherited? How Genetic Patterns Work

Being diagnosed with von Willebrand disease (VWD) may lead you to wonder whether you inherited it...
read article >

Hemophilia Treatments: Your Guide

Without treatment, people with hemophilia and other bleeding disorders are at risk for excessive ...

Hemophilia Treatments: Your Guide

Without treatment, people with hemophilia and other bleeding disorders are at risk for excessive ...
read article >

Thank you for subscribing!

Become a member to get even more: