Connect with others who understand.

Sign up Log in
Quick Links
Q&A Treatments A-Z Help Center Guidelines Crisis Accessibility
Resources
Emotional Well-Being Hemophilia Information Hemophilia Symptoms and Side Effects Hemophilia Treatments Living With Hemophilia All Resources
About MyHemophiliaTeam
What is This Site Terms of Use Privacy policy
Powered By
Living With Hemophilia/Living With Hemophilia
See answer
See answer

Your Answers: The Worst Hemophilia Advice (Infographic)

Posted on November 13, 2016

We asked and you answered! We posted this question: What bits of "advice" do you wish people would stop telling you? and you took the time to respond.

What did we learn? From the unconcerned ("He will grow out of it") to the plain unhelpful ("Is it contagious?"), advice is hurled at us from friends, family, coworkers, even strangers. While most suggestions are probably well-intentioned, hearing them over and over can make us feel that our condition is minimized and misunderstood.

Some of the most common answers we heard:

  • He will grow out of it
  • Is it contagious?
  • Just be more active
  • It could be worse
  • He's fine though, right?
  • Just don't worry

Everyone's situation is different and not all of these apply to each person. Tell us: What advice about hemophilia do YOU wish people would stop telling you?

A MyHemophiliaTeam Member

I became a college professor. I was open with people about my bleeding disorder and tried to educate them. I also stayed away from my old dangerous sports and power tools that had blades. Biggest… read more

All updates must be accompanied by text or a picture.
All updates must be accompanied by text or a picture.

Related

  • Is there a cure for hemophilia? See answer
  • Why am I so tired and what can I do about it? See answer
  • How does living with hemophilia affect mental health and stress? See answer
  • What are foods and drinks to avoid with hemophilia? See answer
GLP-1 Drugs and Hemophilia: Are They Safe To Take?
Living with hemophilia means balancing various aspects of daily health, from managing bleeding ri...
GLP-1 Drugs and Hemophilia: Are They Safe To Take?
Living with hemophilia means balancing various aspects of daily health, from managing bleeding ri...
Can You Get a Tattoo With Hemophilia?
Considering getting a tattoo when you have hemophilia requires careful decision-making. Whether y...
Can You Get a Tattoo With Hemophilia?
Considering getting a tattoo when you have hemophilia requires careful decision-making. Whether y...
5 Ways To Reduce the Cost of Hemophilia Treatment
Hemophilia treatment isn’t cheap. Out-of-pocket costs for clotting factor therapies alone can be ...
5 Ways To Reduce the Cost of Hemophilia Treatment
Hemophilia treatment isn’t cheap. Out-of-pocket costs for clotting factor therapies alone can be ...

Thank you for subscribing!

Become a member to get even more