For people living with Hemophilia A, bleeds are just the tip of the iceberg.
We surveyed people living with Hemophilia A and found that 60% say that pain negatively impacts their life most. Mobility issues (33%), depression (30%) and anxiety (15%) also negatively impact them.
"My regular pain level is at least a '10' on the standard pain charts. The number would probably be a 37 to someone else, but since I live with it every day that's just how it is," one person with Hemophilia A said.
Pain from Hemophilia A can make it difficult to perform household chores, sleep, leave home, exercise, work and run errands on a daily basis. "I can't do what I need to do or WANT to do because of the pain," people kept telling us.
Here's what we learned:
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