Living With Hemophilia/Living With Hemophilia

Beginner's Mind - Not Knowing It All When Living with Hemophilia

Posted on July 27, 2018

"The moment I received my official diagnosis, I dropped all my assumptions about hemophilia. It was so freeing." -Member of MyHemophiliaTeam

Living with a bleeding disorder can be difficult and even a burden, but also an opportunity to rid yourself of what you think you know.

Have you heard the saying, "People don't get it until they get it"? That is so true about hemophilia.

"The more I learn about hemophilia, the more I realize that it's not my fault." -Member of MyHemophiliaTeam

A hemophilia diagnosis forces us to drop our negative assumptions about life with a chronic condition. Members on MyHemophiliaTeam gain perspective from other members' experiences to become better informed about what it's really like to live with hemophilia.

Here are recent conversations from members of MyHemophiliaTeam:

What negative assumptions have you let go of about hemophilia? Tell us about it in the comments below or directly on MyHemophiliaTeam.com.