I am grateful to be connected to a unique community that stands together. I’m so thankful to be able to make connections and learn from each other’s experiences.

My biggest concern is how insurance seems to keep a step ahead of our efforts to keep coverage affordable and accessible.

I'm grateful I survived the many times I came close to death since I was 5 yo in 1949. I don't worry about it unless a doctor insists I do some procedure I know would be risky...then I'm adamant about not doing it. The only time I will ever have another surgery is if it's an emergency situation and there's no other choice. Desmopressin helped me once and I think it would help me in that case.

Thankful for many safe treatment options that allow patients to live life to the fullest.
Concerned when insurance does not have them ALL on preferred list as not every product works for every body. And there is no generic form of these medicines.