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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Bad Is It To Have Von Willebrands And A Platlete Disorder While Delivering A Baby?

A MyHemophiliaTeam Member asked a question 💭
Kenosha, WI

I have Vonwillebrands so does my daughter who is pregnant but she also has a platelet disorder on top of the Von Willebrand's when I was pregnant my doctor said the Von Willebrand's gets better when you're pregnant but when my sister had both her babies she also has a platelet disorder on top of the von Willebrand's she almost died from bleeding I was told von Willebrand's and platelet disorder during pregnancy makes it worse my daughter's Dr doesn't seem to be worried about it but I am and I'm… read more

April 21, 2018
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A MyHemophiliaTeam Member

I don’t have a platelet disorder, but I do have Von Willebrands and bleeding time test are now done via a regular blood draw you don’t have to do the timed test with the cuts on your arms anymore. And yes normally Von Willebrands get better during pregnancy, however not always mine did not. I would contact your hematologist for follow up.

April 30, 2018
A MyHemophiliaTeam Member

I have vwd with platelet and factor VIII ISSUES. I have two children and only had problems after the birth of second. I bled for a month afterwards until they gave me fVIII infusions. That seemed to fix the problem! Just make sure your dr. Is aware of your vw’s and knows what to look for and is educated on what to do. It’s not bad. Don’t worry!

December 18, 2023
A MyHemophiliaTeam Member

Thank you!

May 1, 2018

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