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I Don'know If I Fit In. I Have Factor 5,8 And 10
I only take coumadin, i am hearing different treatments from reading others comments. I don't know that i have a lot of questions. I will as i go on, i just want to fit in. I have a hemotologist at the U of M Minnesota. My Dr. Is suppose to specialize in these types of blood disorders. But he has said to me these 3 together are rare. I also have Stills disease which is an autoimmune disease. It is also rare. I was a nurse and a Social Worker very busy and needed. Now i am homebound and no one in⦠read more
Oh hun that's rough. To have all three definitely has to be hard. I have factor 8. Stay strong tho. How long have you known?
I also have three different disorders: 2, 5, and 13.
It's okay to be a zebra! I have both a bleeding disorder and a clotting disorder! You would think that they would "cancel each other out" but NO! they feed off of each other..*sigh*..keep the faith that you have a good doctor, and go for the quality of life, like I do! ((hugs))
I am not lying about having factor 5, 8 and 10. Dr. Redding told me i am not going for quantity of life. I am going for quality. I have 2 granddaughters that i live and breathe life from. I refuse to give up.
Yes i see Dr. Redding, he calls me his zebra. I am either bleeding out and need blood transfusions. Or i am to think and i have huge blood clots. I get blood clots in muscles and joints. My left wrist and both knees had blood clots in them. They are now replaced. Where do some of you go to Drs?
Anyone With Factor VIII Deficiency Get UTI That Bleeds A Lot? When It Tries To Clot, A Balloon Forms In Bladder And You Can't Pee?
I Have Von Willebrand
Factor 9 Replacement ?!
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