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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Do You Follow A Specific Diet To Help With Hemophilia?

By A MyHemophiliaTeam Member 3 answers

How Do You Prep For Physical Activities To Avoid Injuries? 🏃‍♂️⚠️

By A MyHemophiliaTeam Member 2 answers

Could You Share Any Dietary Changes And Tips That Have Helped With Hemophilia?

By A MyHemophiliaTeam Member 2 answers

Hi Team, This MyHemophiliaTeam What Kind Of Purpose Is Stated, For Helping The Member With Hemophilia ?

By A MyHemophiliaTeam Member
201 questions

No Dr. In My Area Will Remove A Dust On My Neck. What Can I Do?

A MyHemophiliaTeam Member asked a question 💭
Kennewick, WA
A MyHemophiliaTeam Member

Gene, is the cyst causing pain or irritation? If not it might be OK to leave it for now, cosmetic issues aside. Your doc might also be unacquainted with factor replacement therapy and be afraid of… read more

October 28, 2023 (edited)

What's One Natural Remedy That's Helped In Managing Your Hemophilia?

A MyHemophiliaTeam Member asked a question 💭
San Francisco, CA
A MyHemophiliaTeam Member

Of course ice is one of our long-standing tools, though I find it difficult to keep attached on such surfaces. Fifty years ago I was experimented on with porcine (pig) factor at University of Michigan… read more

October 28, 2023

What’s Your Top Survival Tip For Managing Hemophilia In The Summer Heat?

A MyHemophiliaTeam Member asked a question 💭
San Francisco, CA

Help Me What I Can Do For This

A MyHemophiliaTeam Member asked a question 💭
Binangonan rizal

What Vitamins Gud To Take

A MyHemophiliaTeam Member asked a question 💭
Binangonan rizal

What Vitamìns Gud For Me

A MyHemophiliaTeam Member asked a question 💭
Binangonan rizal
A MyHemophiliaTeam Member

Besides occasionally eating I take a daily multi-vitamin/mineral supplement as others mentioned. Also supplements like Types 1, 2 & 3 collagen for bones, joints and cartilage, L-Carnitine amino acid… read more

October 28, 2023 (edited)

Factor 9 Replacement ?!

A MyHemophiliaTeam Member asked a question 💭
Jordan, Amman

What are the replacement to the factor 9 if it isn't available?!We have been suffering from the lack of factor 9 in Jordan since October 2022!

A MyHemophiliaTeam Member

You can reach out to “save one life” or a manufacturer to get factor

January 21 (edited)

Benign Prostate Solutions With Factor VIII Vacuity.

A MyHemophiliaTeam Member asked a question 💭

Need benign tumor reduction.

A MyHemophiliaTeam Member

Had Epilepsy when i was younger had a tumour removed... Ten years later had another growth and had 'gamma knife surgery'. That resolved the problem for me...

May 22, 2023

In Need Of Oral Surgeon In NYC

A MyHemophiliaTeam Member asked a question 💭

Hello. I’m living in NYC can not find an oral surgeon that will do work on a hemophiliac. Any help please.

A MyHemophiliaTeam Member

I like Dr. Mahjoubi. She did my wisdom teeth op

July 17, 2023

What Can We Do By Mutated Plasminogen-Aktivator-Inhibitors 1 ? In My Group Is A Young Man With This

A MyHemophiliaTeam Member asked a question 💭
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