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What's A Common Misconception About Hemophilia?
That only men can have Hemophilia, specifically Hemophilia A. My Mom was NOT a carrier but my Dad had severe Hemophila A. They say I acquired at birth via Lyons Hypothesis. Do you know how many… read more
I Live In An Area Of 330,000 People. I Can’t Find A Surgeon To Remove A Cyst. What Do You Recommend?
Hey @A MyHemophiliaTeam Member! Have you found a surgeon yet? Finding a surgeon experienced with hemophilia can indeed be tough. Here are a few suggestions that might help:
- Hemophilia Treatment… read more
I Hope Everyone Has Had A Good Day!
What Tips Would You Share To Help With Seasonal Allergies?
Clarenese or Alergex
Do Any Of You Lovely People Suffer From Fatigue?
Yes, I’m severe fXI and my fatigue is a daily thing but it’s made worse from the cold. Best thing is to take more time for yourself and caffeine aha
Do You Suffer From Arthritis As A Result Of Bleeds? If So, What Treatment(s) Do You Use?
I have severe arthritis in both of my ankles. I use, Celebrex and an AFO brace.
I have severe arthritis in my knee because of repeated bleeds and had a could have radioactive synovectomys which have just finished my knee off. On celecoxib, txa and 2000 daily benefix
Could You Share Any Dietary Changes And Tips That Have Helped With Hemophilia?
It will bring your hemoglobin up the quicker with making jello and drinking it before it gels and watch the benefits!
Advice About Hemaphila C
Do You Know Your Limit
Do you ever push yourself through a bleeding episode without infusing I do and it's actually not that bad once the bleeding has calmed down and gone away I hate needles is there any advise for this
I would strongly discourage trying to push through a bleed and not infuse. Especially if it is in any major joint. You will definitely pay for it when you get older and you develop severe arthritis… read more
How Do Beverages With Caffeine Affect Your Hemophilia?
Not at all for me either.
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