For people living with Hemophilia A, bleeds are just the tip of the iceberg.
We surveyed people living with Hemophilia A and found that 60% say that pain negatively impacts their life most. Mobility issues (33%), depression (30%) and anxiety (15%) also negatively impact them.
"My regular pain level is at least a '10' on the standard pain charts. The number would probably be a 37 to someone else, but since I live with it every day that's just how it is," one person with Hemophilia A said.
Pain from Hemophilia A can make it difficult to perform household chores, sleep, leave home, exercise, work and run errands on a daily basis. "I can't do what I need to do or WANT to do because of the pain," people kept telling us.
Here's what we learned:
If you haven't joined MyHemophiliaTeam.com yet, sign-up today to connect with real people about managing pain, avoiding bleeds and beating depression while living with Hemophilia.
In what ways have pain and mobility issues impacted your life?
Get updates directly to your inbox.
Become a member to get even more:
We'd love to hear from you! Please share your name and email to post and read comments.
You'll also get the latest articles directly to your inbox.